MEDIA KIT

Assets and resources for journalists, educators, and volunteers

HELPFUL RESOURCES

Knowledge is power, especially when it comes to managing and understanding sickle cell disease. Our Helpful Resources page provides a curated list of educational materials from trusted, medically sound, and research-backed sources.

Discover key facts about the disease, its genetic causes, treatment options, and the challenges faced by those living with it. Whether you’re a concerned community member, a student, or simply curious, these trusted resources will provide you with the knowledge to better understand sickle cell disease and its significance.

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What is sickle cell disease?

This website, from medical experts at Cleveland Clinic, a renowned healthcare institution, provides comprehensive information on sickle cell disease, including its causes, symptoms, diagnosis, treatment options, and potential complications.

National Marrow Donor Program

Be The Match is a nonprofit organization that operates the national bone marrow donor registry, connecting patients with life-saving donors for bone marrow and stem cell transplants. This resource provides information on joining the registry, the donation process, and how donors can help patients with blood disorders, with guidance from experts in transplant medicine.

Foundation for Sickle Cell Disease Research

The Foundation for Sickle Cell Disease Research (FSCDR) is a nonprofit organization dedicated to advancing research, education, and treatment for individuals affected by sickle cell disease. This resource provides information on clinical trials, advocacy efforts, and patient support, with content developed by medical professionals and researchers specializing in sickle cell disease.

Department of Public Health (DHEC)

Cell Disease Association of America

Sickle Cell Medical Advocacy

Warrior Connections

North Central Family Medical Center

MUSC Rena Grant Sickle Cell Center

National Council on Disability

National Heart, Lung, and Blood Institute (NHLBI)

Family Toolkit

Sickle Cells

Catholic Charities of South Carolina

Birthright of Georgetown, SC

WAYS TO SUPPORT

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VOLUNTEER

Make a difference in the lives of those impacted by sickle cell disease. Join our community of dedicated volunteers who provide critical support, raise awareness, and empower those living with this condition. Sign up today to lend your time and talent.

GIVE BLOOD

Your blood can save lives! Sickle cell patients often require regular blood transfusions to manage their condition. Help ensure a steady supply by participating in one of our upcoming blood drives. Every donation counts.

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Support our mission to improve care and outcomes for individuals living with sickle cell disease. Your tax-deductible donation funds vital advocacy, and support programs. Together, we can create a brighter future.