Sickle Cell Patient & Family Community Needs Survey

Share your needs and priorities so The Riley Foundation can develop programs, services, and resources for individuals living with sickle cell disease and their families.

About You

Who are you completing this survey for? *
What age group is the person living with sickle cell disease? *

Your Top Needs

What are the THREE most important services you would like a sickle cell CBO such as The Riley Foundation to provide? *

Healthcare Experiences

When dealing with hospitals, emergency rooms, or healthcare providers, what would help you most? *
What type of financial or practical assistance would be most helpful? *
How would you prefer to receive support from The Riley Foundation? *
How important is it to you that people living with sickle cell disease and their families help decide what programs The Riley Foundation offers? *

Feedback & Suggestions

Optional Contact Information

Would you like The Riley Foundation to contact you about programs, resources, support groups, or volunteer opportunities?
Thank you for sharing your voice. The Riley Foundation for Sickle Cell Disease — Educate • Advocate • Support. Your experiences matter. Your needs matter. Your voice will help shape what we do next.
WAYS TO SUPPORT

Make an impact today

VOLUNTEER

Make a difference in the lives of those impacted by sickle cell disease. Join our community of dedicated volunteers who provide critical support, raise awareness, and empower those living with this condition. Sign up today to lend your time and talent.

GIVE BLOOD

Your blood can save lives! Sickle cell patients often require regular blood transfusions to manage their condition. Help ensure a steady supply by participating in one of our upcoming blood drives. Every donation counts.

DONATE

Support our mission to improve care and outcomes for individuals living with sickle cell disease. Your tax-deductible donation funds vital advocacy, and support programs. Together, we can create a brighter future.